Welcome!

I created this page because Cystic Fibrosis is a very common genetic disorder, especially among caucasians where 1 in 28 Caucasuans are carriers. Even among this being common, a lot of people still do not know what exactly it is and how their children are born with it. With that being said, I wanted to raise awareness on what Cystic Fibrosis is and quickly discuss the classic signs and symptoms, diagnosis, and treatment options. I also wanted this page to be a lot about hope with sharing inspiring videos, support groups, and sharing links where people can read other peoples personal stories.

What is Cystic Fibrosis?

• It is a chronic, progressive and frequently fatal genetic disease of the bodies mucus glands. It is the most common cause of chronic lung disease and pancreatic insuficiency in children because it affects the respiratory and digestive systems in children and young adults.

• Cystic fibrosis used to be considered a super fatal disease of childhood. However, with improved treatments and better ways to manage the disease, many people with cystic fibrosis now live well into adulthood, with an average age of 30-40.
•  Adults with cystic fibrosis experience medical problems affecting the respiratory, digestive, and reproductive systems.
•  In healthy bodies the mucus is thin and slippery and it protects the linings of the airways, digestive system, reproductive system, and other organs and tissues.
•  In people with cystic fibrosis, the body produces mucus that is abnormally thick and sticky. This abnormal mucus can obstruct the airways, leading to severe problems with breathing and bacterial infections in the lungs.
• This condition is inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition.

This is a video mostly geared for children, but it is put together well and very informational for any age.